Rare Team kennenlernen 5/31/24 Rare Team kennenlernen 5/31/24

Know Rare Connect: Leben mit Myositis

Journalist Lindsay Guentzel describes navigating a diagnostic odyssey and how she manages day-to-day life with myositis in an impactful webinar.

Rare Team kennenlernen 10/10/23 Rare Team kennenlernen 10/10/23

Die Sichtweise einer Mutter auf das Leben mit refraktären Anfällen

Rare mom Samantha Deschenes gives us an unfiltered look into life as a parent to a child with refractory seizures.

Rare Team kennenlernen 10/10/23 Rare Team kennenlernen 10/10/23

Tagebuch über Ihre Reise

Join Know Rare in a heartfelt exploration of the profound impact of journaling on the lives of those touched by rare diseases. In the “Know Rare Connect: Journaling Your Journey” webinar.

Rare Team kennenlernen 10/10/23 Rare Team kennenlernen 10/10/23

Verbinden Sie sich mit Mitgliedern des Know Rare Teams

In this recap of our first live Know Rare Connect event, we meet some incredible members of the Know Rare team and hear their stories.